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Tourette Syndrome Statistics

Tourette syndrome is a type of tic disorder. Awareness of Touretteโ€™s statistics can help those impacted find appropriate care and treatment.

There are many misconceptions aboutTourette syndrome (TS), often spread by its portrayal in the media. For example, many people think that Touretteโ€™s involves swearing uncontrollably, but that only happens in a small number of people with the condition.

In reality, Touretteโ€™s is a neurological condition that affects the brain. Usually, it starts in childhood or teenage years. Its characteristic trait is muscular or vocal tics, which are uncontrollable, sudden movements or sounds. Frequently, people with Touretteโ€™s also have other medical or behavioral conditions.

Here, we present somefacts and statistics about Tourette Syndrome. With greater awareness, people with Touretteโ€™s and those who know them can understand the condition better and find help easier.

How Common Is Tourette Syndrome (TS)?

Since many people with Touretteโ€™s are not diagnosed correctly, it is hard to say exactlyhow common Tourette Syndrome is. One estimate says that about0.6%of children, or 1 in every 162 kids, has Touretteโ€™s. A study conducted by the Centers for Disease Control and Prevention found that 1 in 360 kids, or about0.3%of children, had a diagnosis of Touretteโ€™s, meaning that only abouthalfofchildren with Touretteโ€™sare diagnosed.

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Theprevalence of Tourette Syndromeis much higher in boys than in girls. Boys are3 to 4 timesas likely to have Touretteโ€™s as girls. Adolescents 12 years or older aretwice as likelyto be diagnosed with Touretteโ€™s as children aged 6 to 11. Touretteโ€™s is more common innon-Hispanic whitechildren than children of other ethnicities.

Diagnosing Touretteโ€™s

There are no specialized tests to diagnose Tourette Syndrome. Usually,Touretteโ€™s is diagnosedby a family doctor during a routine checkup. During this checkup, the doctor will ask questions to determine what kind of tics a child has, how often they occur and how long the child has had them.

Like other neurological conditions, Tourette syndrome is diagnosed according to guidelines established by the American Psychiatric Association. These guidelines are listed in theDiagnostic and Statistical Manual of Mental Disorders(DSM-5).

Diagnosticcriteria for Tourette Syndromeinclude:

  • Multiple motor tics and one or more vocal tics (not necessarily at the same time)
  • Tics have lasted for more than one year (though they can increase and decrease in frequency)
  • Tics started before the age of 18
  • Tics are not caused by a drug or other medical condition

Tics can start asearly as age 4, but a diagnosis can only be made after the child has had tics for at least one year.

Course of Tourette Syndrome

Fortunately, most children eventually outgrow Touretteโ€™s, and tics rarely last into adulthood. Usually, tics start appearing between ages5โ€“7and peak around age8โ€“12. By early adulthood, the severity of tics is significantly reduced in aboutthree-quartersof people with Touretteโ€™s, whileover one-thirdare completely tic-free. SinceTouretteโ€™s usually doesnโ€™t last longinto adulthood, itsprognosisis favorable.

Rates of Touretteโ€™s and Co-Occurring Conditions

Other medical conditions, especially other neurological disorders, are common among people with Touretteโ€™s. Of children diagnosed with Touretteโ€™s,86%are diagnosed with other behavioral,mental health, or developmental disorders.

Theratesof common co-occurring conditions among Touretteโ€™s patients vary:

Public Health Impact of Touretteโ€™s

Touretteโ€™s can require significanthealthcare costsfor patients with the condition. Costs can come from:

  • Doctor appointments
  • Medications
  • Counseling or therapy sessions
  • Educational accommodations

The long-term impact of Touretteโ€™s on a childโ€™s mental and physical health andeducationcan also have negative effects on their employment, social life and family relationships.

The fullpublic health impactof Touretteโ€™s is not fully understood. Fortunately, as publicawareness of Tourette Syndromeincreases, medical professionals learn more about the condition and the best ways to manage it.

Statistics on Touretteโ€™s Treatment

Tics are usually mild, andthe vast majorityof Touretteโ€™s cases do not need to be treated medically. However, tics should be addressed if they are interfering with a personโ€™s daily life.Treatment for Touretteโ€™smayinvolve medicationto control impulsive behaviors, along with counseling and physical or occupational therapy. Theoutcome of this treatmentis usually a reduction in the frequency or severity of tics. However, Touretteโ€™s cannot be cured, and tics typically do not go away entirely with treatment.

Early Treatment Outcomes

Rather than medical treatment, Touretteโ€™s is usually managed with educational interventions. About half of children with Touretteโ€™s have an individual education plan (IEP) at their school to help with learning challenges. As of today, not much is known of the full impact ofearly interventionfor Tourette Syndrome. However,early treatmentdoes seem to improve the learning, behavioral and emotional effects of the disease.

If you or someone you love is affected by Tourette Syndrome and substance abuse, pleasecontact us at The Recovery Village. We offer comprehensive treatment for addiction and co-occurring mental health conditions at reputable centers across the country.

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Sources

Centers for Disease Control and Prevention. โ€œTourette Syndrome (TS) Data & Statistics.โ€ October 1, 2018. Accessed April 20, 2019.

Centers for Disease Control and Prevention โ€œPrevalence of Diagnosed Tourette Syndrome in Persons Aged 6โ€“17 Years โ€” United States, 2007.โ€ Morbidity and Mortality Weekly Report, June 5, 2009. Accessed April 20, 2019.

Centers for Disease Control and Prevention. โ€œTourette Syndrome (TS) Bridging the Public Health Gap.โ€ April 13, 2018. Accessed April 20, 2019.

Claussen AH, Bitsko RH, Holbrook JR, Bloomfield J, Giordano K. โ€œImpact of Tourette Syndrome on School Measures in a Nationally Representative Sample.โ€ Journal of Developmental & Behavioral Pediatrics, May 2018. Accessed April 20, 2019.

American Psychiatric Association. โ€œDiagnostic and Statistical Manual of Mental Disorders.โ€ May 2013. Accessed April 20, 2019.

Bloch MH, Leckman JF. โ€œClinical course of Tourette syndrome.โ€ Journal of Psychosomatic Research, December 2009. Accessed April 20, 2019.

National Institute of Neurological Disorders and Stroke. โ€œTourette Syndrome Fact Sheet.โ€ July 6, 2018. Accessed April 20, 2019.

Medical Disclaimer

The Recovery Village aims to improve the quality of life for people struggling with substance use or mental health disorder with fact-based content about the nature of behavioral health conditions, treatment options and their related outcomes. We publish material that is researched, cited, edited and reviewed by licensed medical professionals. The information we provide is not intended to be a substitute for professional medical advice, diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified healthcare providers.

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